Patient Data Sharing: How your personal information is used

The healthcare professionals who provide you with care maintain records about your health.  Sharing this information helps to improve the treatment you receive, such as a hospital consultant writing to your GP.   We follow strict data sharing guidelines to keep your information safe and secure.


GP Records are stored electronically and on paper and may include the following information:

  • Details about you, such as your address, carers, legal representatives, emergency contact details, etc.
    • Any contact the surgery has had with you, such as appointments, clinic visits, emergency appointments, telephone calls, etc.
    • Notes and reports about your health
    • Details about your treatment and care
    • Results of investigations such as laboratory tests, x-rays, etc.
    • Relevant information from other health professionals, relatives or those who care for you

Your records are used to ensure you receive the best possible care. Information held about you may be used to help protect the health of the public and to help us manage the NHS. Information may be used within the GP practice for clinical audit to monitor the quality of the service provided.
Some of this information will be held centrally and used for statistical purposes. Where we do this, we take strict measures to ensure that individual patients cannot be identified. Sometimes your information may be requested to be used for research purposes – the surgery will always gain your consent before releasing the information for this purpose.

Risk Stratification

Risk stratification data tools are increasingly being used in the NHS to help determine a person’s risk of suffering a particular condition, preventing an unplanned or (re)admission and identifying a need for preventive intervention. Information about you is collected from a number of sources including NHS Trusts and from this GP Practice. A risk score is then arrived at through an analysis of your de-identified information using software, and is only provided back to your GP as data controller in an identifiable form. Risk stratification enables your GP to focus on preventing ill health and not just the treatment of sickness. If necessary your GP may be able to offer you additional services.
Please note that you have the right to opt out of your data being used in this way.

Medicines Management

The Practice may conduct Medicines Management Reviews of medications prescribed to its patients. This service performs a review of prescribed medications to ensure patients receive the most appropriate, up to date and cost effective treatments. This service is provided to practices within West Leeds through NHS Leeds West Clinical Commissioning Group.

How do we maintain the confidentiality of your records?

We are committed to protecting your privacy and will only use information collected lawfully in accordance with:

  • Data Protection Act 1998
    • Human Rights Act 1998
    • Common Law Duty of Confidentiality
    • Health and Social Care Act 2012
    • NHS Codes of Confidentiality, Information Security and Records Management
    • Information: To Share or Not to Share Review

 

Every member of staff who works for an NHS organisation has a legal obligation to keep information about you confidential.

We will only ever use or pass on information about you if others involved in your care have a genuine need for it. We will not disclose your information to any third party without your permission unless there are exceptional circumstances (i.e. life or death situations), where the law requires information to be passed on and / or in accordance with the new information sharing principle following Dame Fiona Caldicott’s information sharing review (Information to share or not to share) where “The duty to share information can be as important as the duty to protect patient confidentiality.” This means that health and social care professionals should have the confidence to share information in the best interests of their patients within the framework set out by the Caldicott principles. They should be supported by the policies of their employers, regulators and professional bodies.

 

Who are our partner organisations?

We may also have to share your information, subject to strict agreements on how it will be used, with the following organisations;

• NHS Trusts / Foundation Trusts
• GP’s
• NHS Commissioning Support Units
• Independent Contractors such as dentists, opticians, pharmacists
• Private Sector Providers
• Voluntary Sector Providers
• Ambulance Trusts
• Clinical Commissioning Groups

• NHS Digital (formerly HSCIC)

  • Social Care Service
  • Local Authorities
    • Education Services
    • Fire and Rescue Services
    • Police & Judicial Services
    • Voluntary Sector Providers
    • Private Sector Providers
    • Other ‘data processors’ which you will be informed of

You will be informed who your data will be shared with and in some cases asked for explicit consent for this happen when this is required.

We may also use external companies to process personal information, such as for archiving purposes. These companies are bound by contractual agreements to ensure information is kept confidential and secure.

 

Access to personal information

You have a right under the Data Protection Act 1998 to request access to view or to obtain copies of what information the surgery holds about you and to have it amended should it be inaccurate. In order to request this, you need to do the following:

 

  • Your request must be made in writing to the GP – for information from the hospital you should write direct to them
    • There may be a charge to have a printed copy of the information held about you
    • We are required to respond to you within 40 days
    • You will need to give adequate information (for example full name, address, date of birth, NHS number and details of your request) so that your identity can be verified and your records located

 

Objections / Complaints

Should you have any concerns about how your information is managed at the GP, please contact Jane Heuston, Practice Manager. If you are still unhappy following a review by the GP practice, you can then complain to the Information Commissioners Office (ICO) via their website (www.ico.gov.uk).

 

If you are happy for your data to be extracted and used for the purposes described in this privacy notice then you do not need to do anything.  If you have any concerns about how your data is shared then please contact the practice.

 

Change of Details

It is important that you tell the person treating you if any of your details such as your name or address have changed or if any of your details such as date of birth is incorrect in order for this to be amended. You have a responsibility to inform us of any changes so our records are accurate and up to date for you.

 

Notification

The Data Protection Act 1998 requires organisations to register a notification with the Information Commissioner to describe the purposes for which they process personal and sensitive information.

This information is publicly available on the Information Commissioners Office website www.ico.org.uk

The practice is registered with the Information Commissioners Office (ICO).

 

Who is the Data Controller?

The Data Controller, responsible for keeping your information secure and confidential is:

Laurel Bank Surgery (Name of practice)

 

Complaints

Should you have any concerns about how your information is managed by the Practice please contact the Practice Manager.

 

If you are still unhappy following a review by the Practice you can then complain to the Information Commissioners Office (ICO).  www.ico.org.uk, casework@ico.org.uk, telephone: 0303 123 1113 (local rate) or 01625 545 745.

 

An Overview of Healthcare Data Sharing in Leeds (including Leeds Care Record):

leaflet-sharing-healthcare-records-july16

 

Summary Care Record (SCR)

The Summary Care Record is a secure, electronic patient record that contains key information from your detailed GP records that can be accessed by emergency services to ensure safe treatment.  The core information held on your SCR is current medication, allergies and any previous adverse reactions to medicines.  Significant medical history, care plans, or patient wishes can also be shared with your consent.

When you registered a basic SCR will have been created for you.  You may choose to opt out of sharing any information at any time. Please contact reception who will send you a form to record your choice.

You may opt to share a detailed SCR which includes significant medical history, care plans, or any care preferences you may have.  To give your express consent for this, please contact Reception.

For more information on the SCR, please see the NHS Digital (formerly known as the HSCIC) website: http://systems.digital.nhs.uk/scr/benefits.

Data Protection Act 

Data Protection Act – Patient Information Leaflet